Friday, January 29, 2016

Half Zumba




Finally, after more than two months I bring myself back to my Zumba class. Kim, the teacher and the regulars are happy to see me and say how great I look. Looks like ‘thin is in’. There is no faster way to lose 25 pounds but I wouldn’t recommend what I have been through. My energy is way below Zumba level. I take up a place in the back and watch all the energetic bodies launching themselves into routines. I said half Zumba but I am actually below a quarter Zumba, I only move around for half the class sitting out some of the songs and at a much lowered energy level. Susan is moving in front of me, dancing and getting all her fitness points. Yet there is a value in just being there. We leave and I am tired but a good tired. Its going to take a long time to get back in shape but its great to have activities that call me to participate. So much better than my food recovery which is slow, limited and while I can eat a few more things, food in general is still of no interest to me and I have to eat by the clock. 

One of the classic Zumba pieces, I do this once at home and I am exhausted, someday,,,,




Monday, January 25, 2016

How I Will Know When I Am Healed

I have posted less in this recovery phase as the changes are so slow.  I know of at least two more posts I look forward to making in the months ahead. One will be 2+ months from now when I have a PET scan which will confirm that I am free of cancer in my body. And the other will be, when I am  healed. Some day I will know because I will launch myself into a piece of music, I will jump, spin, flap and fly and maybe drool a little but will be the music without separation. I assume, although a different sound might creep in, that the music will come from Didge-Na-Gig, Haana or Scott Huckabay. I find it interesting that I encountered all this music at Burning Man festivals. Like most children of the 60’s I was surrounded by music. My earliest music exposure was probably my Dad playing a concertina in a polka band.  I can remember the songs of the Hit Parade from the 50’s and all the sounds that followed in the 60’, 70’, 80’s up to current times. But the music at Burning Man had that remarkable effect of totally shifting time and place, contact with the musician and with others listening or dancing. A space opens where there is just pulsing potential and aliveness. This healing could occur in dance class, on a beach with Susan, or anywhere, I trust it will happen. When it calls, calls me into being, I will be there on fire.

Let me introduce these songs, trusting you will have a good experience:

Didge-na-gig is a ‘special song’ that sometimes plays in my head, it is my soundtrack to EDM/electronic type dance music, it pulses with life. It has a history with Susan and I but when I hear it  it has no history or future, only present. We first heard it at Burning Man in 2007, Susan found it at a camp playing trance dance music and she later use it used it for our slideshow soundtrack for that event. It never left us.  I had to track down the source group which proved difficult. even though this was the modern era of electronic information I searched and found that Global Seventh Wave (Nigel Shaw & Carolyn Hillyer) rather than being Australian aborigines are Brits living in Dartmouth moor playing mostly traditional acoustic folk music. (Maybe Didge-na-gig came from another part of their music timeline.) Their song is not available on iTunes, any other streaming or download site and not even youtube! I ordered a CD and a week later was holding music I still can not get out of my head. They have several other songs that I love. I do not see that they have any concerts in the US which means I will have to add a trip to the UK to hear them live. Most people have a favorite music sound, it can be jazz, C&W, folk, rock or many other choices. For me, my ideal sound is electronic with a didgeridoo  and a good female voice. Global Seventh and Jaya Lakshmi/Lost At Last go to that place.. 

When I hear Didge-na-gig  I HAVE to move. I remember once dancing till I was nearly exhausted and the DJ played this song. And as I am pulled into its orb a little voice goes off in the back of my head, saying ‘you might die’, and this is not just crazy paranoia. I actually had a heart condition that later required two A-fib heart ablation procedures to resolve. But I pick myself up and launch into the music, seriously, If I’m going to worry about dying I will never be alive. And if I’m going to go I’ll go dancing. Dancing with that edge brings a vitality that others may experience sky diving or other risky activities, being fully alive in the moment. I cannot post a link to the whole song, there is no youtube and dropbox will not produce a public link but this is their web site which plays samples and I trust you will get a sense of the music.


I posted about Haana early in this blog, I will repost some of that here:

A little of its history in my life: So there we were, Susan & I at Burning Man 2015, not being very good Burners we slept (or tried to) most of the night. This means we missed the extensive after midnight activities including dance & circus acts. The trade off for this energy cycle is that we were up mornings, usually at dawn, the playa was relatively empty and cool. We could see all the art pieces without lines and in beautiful morning light. And there we were at the Temple when a huge dragon shaped art car pulls up with a loud sound system. Playing on top is an amazing woman with a violin. The red headed lady had a wireless pickup and came down, people danced and whirled around her, an intoxicating sound, I danced until I dropped. I asked about the car/music/musician, simply ‘who are they’ and got an answer that was Haana, from NYC and a particular camp. The next day I was out again at dawn to dance with the dragon and wild redhead lady. The second song on my Dancing With Mr C Playlist is therefore Leya by Haana. Dance till you drop.

song: http://tinyurl.com/ybd2mdew




Then there is Scott Huckabay. Heard him in 2007  and a couple times after that. Not so much dance music but space opening sounds. He has a remarkable history. He was an adult injured in a motor vehicle accident and in recovery was given a guitar which he could not play, he would use it more as a percussion instrument until he could hold it properly, and when he did learn to play he used with different tunings. He uses a wireless mike freeing him to move and I have seen him spinning for 5 and 10 minutes while he plays. If you go to the youtube link below make sure to see the second track where you can see how he looks live. Being there is so powerful, I hope you can pick up some of that energy off the recordings.

http://tinyurl.com/ybnbhv3b

Wednesday, January 13, 2016

Let's Dance

And on Monday I return to dance. It is mostly wonderful. Friends, hugs, body movement. Two minor downsides, I do not move freely, other dancers  launch themselves into routines that I used to be able to do, now I watch and move slowly around. And the session turns into a remembrance of David Bowie, http://tinyurl.com/y7q8awj5  the DJ works a number of his songs into the music flow. I dance for about an hour. Have my heart monitor on and I get some good exercise in as well as the movement benefits of dance. I am tired a lot on Tuesday but its a good tired. Eating is getting a bit better. I still have one hole in my mouth and a sensitive tongue but I am starting to be able to taste some things and I now can eat a few more soups and Chinese food that doesn’t have spices. This makes it a bit easier on Susan as I can pick up something so she doesn’t have to cook all the time. 


On Wednesday Susan and I meet our friends Nancy and John for my first outing around the Rose Bowl. This is a three mile walk. I used to wear a weight vest and carry hand weights and I could not get more that a couple minutes of ‘fitness’ on my exercise heart monitor. Now, unladen, I toddled around and the heart monitor indicates a real workout. Afterwards I am tired but a good tired. Fitness is slowly returning. Improvements are so slow in coming, at least the direction is a good one.

Thursday, January 7, 2016

Happy New Year/May The Force Be With You



Susan and I look forward to a wonderful 2016. 2015 has been pretty grim but I may yet come to hold it differently. The whole cancer treatment has been one version of hell. But I know from experience that the context of life can shift in way that may put a more positive understanding of things. Many years ago  I was working for a crazy boss, really right out of the Caine Mutiny situation. I was working in a small Navy office in London, two people had nervous breakdowns and I would probably be next. Fate shined, the perpetrator cracked first and actually went running down the street naked and was promptly deported. The office had a going away party for him and didn’t invite him. It was a real celebration. But the mental damage took quite a while to recover. Fast forward a few years and I was now in my long career NASA office at JPL. All employees were getting furloughed a couple weeks without pay and there was talk of staff cutbacks, no ones job was secure. I really just didn’t worry about it. The other office folks had not survived what I did. So I came to appreciate how the London experience has ‘hardened’ me. Maybe, with luck and time, I will have a better way to hold the cancer ordeal.

New Years Eve we had been invited to a party from our dance group. They do great parties but this year we just get to see the Facebook pictures. We are there in spirit but the flesh is weak. Just not enough energy. On New Years Day we watch the Rose Parade on TV despite being able to see the floats from the back window of our house. Just not enough energy. On Monday the 4th, I get to feel a bit more normal. Susan and I go to the mall with our friends, we see Star Wars. Great afternoon and all I have to do is sit there but it expends all my energy for the day and I miss Monday night dance. Dance wimp. My idea is to have part of each day feel like a ‘normal’ day. On Tuesday I am out expending energy in the rain securing the house from a rain storm. Had to dig a small trench and get leaves out of the gutter. I was pushed to my limit, totally out of breath almost falling over and I miss the Tuesday night Lodge meeting I had hoped to attend. 

Now for some good news. On Thursday the 7th I get my first post treatment medical examination. This is just a visual scope down the nose through the throat and other physical evaluations. The word is that I am doing as well as possible at this stage. That I can taste anything is a good sign. I will return for a physical in two months and if things look right they will schedule a PET scan to see if there are any cancer cells remaining anywhere in my body. I am told, very clearly, that this is a long process; weeks, months and even years before taste returns to whatever level it will be. And dry mouth will get better only slowly over years. My dreams of February/March/April on a beach in Hawaii, carefree, recede. But they are only on hold, not cancelled, because 2016 is going to be a good year. May The Force Be with All Of Us.

And a song for Susan who has been my bridge throughout this whole undertaking.